Photo coming soon!

I am currently 32 weeks pregnant. My son Zachary's HLHS was discovered on his 20 week ultrasound. My husband, Mike, and I have been thrown into systems and realities that are frustrating and painful. We have many hard choices and journeys ahead that will affect us and Zachary for the rest of our lives. Lately, I feel that all my expectations have been torn apart.

Zachary's HLHS is more complicated in that he has a typically small aorta and part of the aorta has fused with his pulmonary artery and part of his aorta is missing. Furthermore he has a common valve or hole in his hear between his left and right ventricle. The surgeon gave him less than 30% survival of the Norwood procedure. Never mind the long term affects this will have on my sons life.

I'm searching for support, hope, anything that will give comfort to my own breaking heart. I'm starting now because I'm determined to see this through to the end. I pray that I can post Zach's picture up one day on this site. For the time being I will hold the space blank.