Wright at 3 months

Wright was born of 3/7/2002 full term. His pediatrician noted a "very loud" heart murmur the next day. When Wright was 2 days old we were told by the cardiologist he had Tetralogy of Fallot and would be fine?with surgery.

Wright's Tetralogy was repaired on 7/22/2002 by Dr. Joseph Forbess at Children's Healthcare of Atlanta, Egleston. The VSD was closed with a Dacron patch, his pulmonary valve was removed and a transannular patch was placed to enlarge the pulmonary artery and left branch pulmonary artery. His PFO was left open to decrease the pressure in the heart and aid in healing.

While at Egleston, we learned that Wright has 22q11.2 deletion or DiGeorge/VCFS Syndrome. Wright has mild facial anomalies, a missing thymus but normal immunity thus far and some mild swallowing/eating problems. To the naked eye he looks "perfect." To us he IS "PERFECT."

Wright is doing great 3 weeks post-op! His appetite is still not back to normal, but we hope with the reduction of some of his meds it will increase. We do anticipate to have a valve replacement and possible catheterization to enlarge the right branch pulmonary artery at a later date.