CHIN: Information and resources for Families, Adults and Professionals

CHIN Community Portrait Gallery

Community

Resources

Links

About

Home

What's New

Contact

Search
 

Tyler Matthew

DILV, Glenn


Tyler (2010)
Tyler
Tyler (2008)
 
 
Tyler Matthew was born October 24, 2007 and was born with Double Inlet Left Ventricle (DILV), a heart defect that left him with no right ventricle. Tyler's PDA stayed open at birth which created the right conditions to skip the Norwood since his sats were at a good level.

Tyler starting desaturating around 3 months of age and the doctors decided to go ahead and perform the Glenn. The surgery went smoothly but Tyler remained in the hospital with some complications for about a month after surgery  (chylous effusion, a pleurodesis, and a lung collapse).

Tyler has been truly blessed and, other than his hospital stay at birth and for the Glenn, has not been sick once! He is a very healthy baby and is growing fast.  

September 2008 Update

Tyler is 11 months and doing great. Many heart babies are not as fortunate, so we look at every day as a gift form above!

July 2010 Update

Tyler has been doing great since the Glenn. No issues have come up. The doctors are saying he should be able to have the Fontan when he is 3-4 years old. Other than the scar on the chest, the only indicators that he is even a heart kid is the bruising from the daily dose of aspirin, and with physical activity...Tyler will will stop and sit or lay down after running around for a few minutes. Other than that, he is doing very well.

— Matt, Tyler's Dad (Dallas, TX)


This article was last updated on September 24, 2008

  • Born: October 24, 2007
  • Diagnosis: Double-Inlet Left Ventricle (DILV), Transposition of the Great Arteries (TGA), Pulmonary Stenosis (PS), Ventricular Septal Defect (VSD), Atrial Septal Defect (ASD), Pulmonary Hypertension, Chylous Effusions
  • Treatment: bi-directional Glenn, mechanical and chemical Pleurodesis, oxygen at home for one month to treat hypertension


 

To comment on a portrait or send a message to the author, please email portraits@tchin.org.
Be sure to identify the portrait so we can properly direct your message.

Portraits are a benefit of membership in the Congenital Heart Information Network.
Click here to find out how you can become a member!


Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
Become a Member

 Community Resources Links About