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Jordan

Awaiting the birth of our twin sons was getting more and more difficult.  After being hospitalized on many different occasions for preterm labor, Jonathan & Jordan were finally delivered by emergency c-section on the early morning of  March 12, 1998.  It seems I had developed toxemia, and since I had been given steroids two days earlier to develop the boys' lungs, the doctor thought it would be safe for them to be born at 34 weeks gestation.

After the boys were wrapped in blankets, we were able to take a few photos with them.  I was taken to recovery and the boys were taken to the nursery.  We were told that Jordan was having some difficulty breathing, but it was expected since they were 6 weeks premature. 

My husband went home to shower and I was settling into my room when the doctors came in to talk. They said Jordan's heart hadn't formed right and that he was being transported another hospital which is almost 2 hours away from us.  hey explained that he had Tricuspid & Pulmonary Atresia, and that he needed surgery immediately. That whole conversation felt as if it were a dream. They took him away before I even got to see him.

The next day, the doctors came in to tell us that Jonathan had a hole in his heart, and that they would need to keep a close eye on him (his hole closed on its own by the time he was about 4 months old).  Jonathan and I were able to go home after 3 days, but the doctors wouldn't let me go for Jordan's surgery the next day. The surgery went well, and he came home when he was 12 days old. He was very small and fragile at 4.6 lbs. and wasn't feeding well  He also had Reflux, which has just recently, at 21 months, gotten under control). Day by day, he grew stronger.

At 6 months, the doctors decided he was ready for his next surgery, this one, open-heart.  Again, the surgery went well (Glenn Shunt) and he was home in 5 days.  He was back to himself, playing with his brother, just 6 days after his surgery.  He's such a strong little boy!

Jordan was also born with Bladder Reflux. He had corrective surgery in April of 1999 at 13 months of age.  Once again, the surgery went well, and he was home in 3 days.

Jordan sat up a little later than Jonathan did, and also crawled later.  He started walking at 15 months, a month later than his brother.  Otherwise, he's right on track...right where he should be developmentally.  He still needs one more open-heart surgery when he's 4 or 5 years old.  We can't help but worry about that one.  He'll be older, he'll understand more and will be scared. We just have to find the strength to get him, and ourselves, through it.

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