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Lucas Malachi

HLHS


Hello, my name is Roxanne Romero. My unborn son was currently diagnosed with HLHS. I went to a scheduled ultrasound and they attempted to look at the baby's heart but couldn't get a good view. I had two other attempts from the techs after this between 18-23wks. My last ultrasound was on a Monday and the doctor came in and saw that the baby’s left side of his heart looked underdeveloped. So I was scheduled to see a pediatric cardiologist on Wednesday.

This was the most horrible day of my life. The tech took about 40+ ultra sounds of the baby’s heart and then I met with the cardiologist and he gave me the news. I was so devastated. I wasn't sure what to think, what to do and my life had just become a roller coaster ride. Sadness and heart ache, emotions after emotions.

My boyfriend and I talked about the options and chose to go with the three stage surgery. I will be on my way to Denver in September to deliver my son. Everything has changed so much and all my plans are gone. We are just praying for a miracle, having faith and staying positive. Our lives have done a complete 360. It is definitely going to be a journey for us. We are ready for the ride because there is nothing more that my son deserves but a chance at life. They say God never gives you what you can't handle. Please keep us in your prayers and I will keep everyone updated on our little angel.

— Roxanne and Jose (New Mexico)


This article was last updated on June 8, 2010

  • Born: September 7, 2010
  • Diagnosis: Hypoplastic Left Heart Syndrome
  • Treatment: Norwood Procedure with Sano Modification, Fontan Procedure, and Glenn Shunt Procedure


 

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Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
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