Lily Jane was born on February 25, 2006 with HLHS. She has
undergone the Norwood, bi-directional Glenn, and Fontan
surgeries at the Children's Hospital of Philadelphia (CHOP)
with Dr. Thomas Spray. She also had a pacemaker placed in
December 2006 to help better manage fluctuations in her heart
rate due to ectopic atrial tachycardia.
Lily is currently a 4 year old girl who enjoys going to
preschool, taking dance class, horses, and Disney princesses.
Her condition is stable and she is growing and thriving each
day. She is our hero!!!
