Our little Lee was born on December 8, 2007. I had a healthy uneventful pregnancy and the birth went well. When Lee was born the nurses found a heart murmur and said it could be nothing, or it could be something. However we had to wait three weeks to get in to see the pediatric cardiologist. That was the longest three weeks of our life. Finally we got into see him and said its not good news. Lee was diagnosed with a severe case TOF and would be needing open heart surgery, but the cardiologist wanted to wait and see if we can get Lee to gain weigh. But he couldn't.
Six weeks after Lee was born, it was a cold winter night and Lee and I had just woke up from a nap. He was crying, so I assumed he was hungry and went in the kitchen to make him up a bottle. Just as soon as I got in the kitchen he suddenly got quiet. I then went to check on him and when I picked him he was white and limp.
I ran to the couch and with one hand was checking his breathing, and he was breathing — that was good. Then I started to push his little legs to his chest to get blood flow to his heart, I called my neighbor and she came over before I could hang up the phone and Lee finally started to come around but was still very weak and very white. Then the medics came and we still had to go 23 miles to the nearest hospital. Lee was transported to a bigger hospital in Portland, Oregon. We got there at 3 am and got the news at 5am that he would be next in line for heart surgery.
On January 18, 2008 Lee underwent a complete repair for his TOF. When he got out of surgery, his oxygen saturation was 100% and he recovered nicely.
In June 2008 Lee went back and had a cardiac catheterization to repair the pulmonary stenosis. Lee is now 2 years old and will need follow-up once a year. He's my little bud and a miracle. We love you Lee!