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Kate

TOF, Complete Repair


Kate at 17 months
 
 
 
Kate was my second-born. Going through pregnancy the second time around seemed to be a breeze. You kind of already knew what to expect. Prenatally everything was fine. I went into labor early in the morning. Made it to the hospital 6 cm dilated. Ten hours later she was born VBAC, A 5lb. 13 oz. miracle. All checked out well. She passed all of her tests and was a perfect new addition to our family.

During our stay at the hospital she ate well, slept well and did all the same things that all new babies do. The doctors kept coming in the room to check on us. There was lots of whispering. Residents, students and other doctors kept coming in the room and listening to her heart. I did not bat an eye at this. Just thought "newborn protocol" Day 2 of life they said she had a murmur and wanted to see what was going on. They said, a lot of times children outgrow these but they just wanted to check to be sure. I will never forget being in the room while they tested her. It took them over 2 hours. They came back in with the worst news ever. She had TOF. Day 3 of life she was sent home with us. We were given the instructions on how to treat "blue spells" and the best advice... be a parent and take care of her needs. let the doctors do the medical work.

At 2 months and 10 pounds she went into surgery. She had a complete repair without complications. We spent a whole 5 days in the hospital.

Kate is now 18 months and doing wonderfully. We follow cardiology every 6 months. She is on no medication and has no restrictions. She is growing well and is full of spunk. Unless you see her "boo-boo" on her chest you would never know. She is amazing!!!

— Erin and Harry, Kate's parents and big sister Morgan (Central Pennsylvania)


This article was last updated on April 28, 2010

  • Born: October 9, 2008
  • Diagnosis: Tetralogy of Fallot (TOF)
  • Treatment: TOF Complete Repair


 

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Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
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