Jorge

Hello everyone. We are new to this as many of you probably are. Jorge, my son is 3 months old and has CHD. We first learned about this when I was just 32 weeks pregnant. I went into the hospital for preterm contractions. So after we went home ok and went to the ob the next day for a check up from the contractions. When we went he heard a heart murmur. He told me not to worry—that it's probably nothing but he sent me to a high risk doctor "just to make sure".

So I wasn't expecting anything to be wrong, but they came back in after the ultrasound and doctor said he wanted to do an amnio. WHAT!! I couldn't believe what I was hearing. There can't be anything wrong with our son. I cried through the whole thing despite it hurting my nerves were a wreck. To make my long story a little shorter, the amino came back ok but I then met a fetal cardiologist who diagnosed us with TGA and heart block. So we said we'd do whatever we had to. I went to the doctor twice a week.

Then November 28, three weeks early, my little honey came into this world. He was so big for being early. He's so beautiful! They took him right away to NICU. I held him only for seconds. That was ok because I wanted them to check him and make sure he was going to be be ok. So now we go to the pediatric cardiologist about once a month—we've had several monitors and he seems to be doing ok, other then he now has developed pulmonary stenosis. But they are just watching it.

Jorge will be getting a pacemaker sometime soon for the block, but it's not complete block anymore—it's second degree block. That worries me, but do what ever you have to do to have him healthy. So I'll keep everyone posted.

May 2007 Update

Little Jorge had his pacemaker implanted on April 25 2007. The procedure went well. They did think they would have to re-operate though—he was not using his left arm. They placed the pacemaker under his chest wall so he was pretty swollen and sore. They had a neuro doctor evaluate him to see he they damaged nerves ( because of the fact he wasn't lifting or moving his arm on that side) but thank goodness he was fine. After the swelling started to come down he started to move it more and more! I was a wreck waiting through the surgery. I cant imagine how I'll be when it comes to open heart surgeries. So it's been a month now and he's getting back to normal. I honestly didn't think I'd see him turn 6 months old but he does in a couple days!!! God bless my little man, I love him so much If I could I'd give him my own heart to make him better!!