We went to the doctor's in the Spring of 2009 because Jeanaveve had cold-like symptoms that weren't resolving. Her doctor found a heart murmur and suggested we have an echo done just to be on the safe side. We did the echo and went on vacation. As soon as we returned home we got a call that something didn't look right on the echo. We were referred to a peds cardiologist who did another echo and said it was PAPVR and she had a secondary superior vena cava, but that we had time before any treatment was necessary.

This spring we traveled to Buffalo to have a sedated echo and sedated MRA done. These confirmed the PAPVR but didn't give a clear enough picture of exactly where the anomalous veins connect. So now we are going to Rochester to have a cath done. The doctors all keep saying "if." "IF" she needs surgery. This isn't going to correct itself, so I am preparing myself for my baby having open heart surgery.