I found out about while I was pregnant, at 18 weeks. And that is when the cardiology visits started. I had to drive 300 miles once a month so the cardiologist could get an echocardiogram to gather as much info as possible before he was born. It was hard news to swallow but the doctors were very positive and reassuring.

Jason was nearly 8 lbs at birth. You wouldn't have known anything was wrong with him. They took him to the NICU to be prepared for transport to The Children's Hospital.

Jason had the DKS a week after his birth. They had to leave his chest open for four days. He was off the respirator after five. He stayed in the hospital for about a month because he had pulmonary edema and fever. He was on oxygen for five months between the first and second surgery.

Jason had the Glenn at six months old. He only stayed in the hospital for a week. He was on occupational therapy and physical therapy for a couple of months after his Glenn. He soon showed he didn't need the help anymore.

He is the happiest boy. Always smiling at everyone. He keeps up with his big brother. Nothing ever slows him down.