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Hayley Elyse

Tetralogy of Fallot (TOF)


Hayley

Hayley is our miracle baby. She was born a month early weighing only 3 lbs. and 14 oz. When she was 5 days old she was diagnosed with Tetralogy of Fallot. She is a tough little baby! When she was 2 weeks old she had open heart surgery to put a temporary shunt in. Her recovery was amazing! Over the first year we watched our precious little girl grow.

When Hayley was 11 months old she had her full repair at Columbia Presbyterian. She came through the surgery fine and we went home 10 days later. We were able to celebrate her first birthday knowing her heart was corrected. We actually had her first birthday party on the anniversary of her first surgery.

Hayley is now 18 months and talking up a storm. She loves Sesame Street, Jo Jo's Circus and going to classes with her friends. She is the sweetest little girl who loves to give kisses.

— Merrie and Jon, Hayley's parents (New York)


This article was last updated on January 20, 2005

  • Born:  July 23, 2003
  • Diagnosis:  Tetralogy of Fallot (TOF)
  • Treatment:  B-T Shunt 8/03, Full Repair 7/04


 

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Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
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