Gabriel and his twin brother Jedidiah were born at 35 weeks in Kenosha, WI and both transferred to Children's Hospital in Milwaukee the same night. They both had breathing and feeding difficulties. We thought that was the worst of what we were facing. At one week the doctors heard a murmur in the NICU and ordered an echo. We were given the diagnosis that afternoon and Gabe had a B-T Shunt done at 9 days old. He recovered pretty well and was home at 25 days.
Gabe came home on oxygen and numerous meds and we waited for the Glenn. Gabe had Bi-Directional Bi-Lateral Glenn Shunts done Dec 20th, 2005. His left Glenn came out great but his right one has had to be ballooned once and is being watched carefully. Gabe had multiple complications after his Glenn and was in the hospital 113 days. His left diaphragm was paralyzed and had a pleural effusion on the right. He was in the PICU for 56 days and intubated for 41 days.
Gabe was able to eventually pull himself out of the darkness and find his way back to us. Gabe came home with a g-tube and continued oxygen. Since he came home in April 2006, Gabe has been playing catch-up. Jedidiah went to live with grandparents in South Dakota for 11 weeks while Gabe was so sick. Gabe started walking around Christmas of this year and his eating has slowly improved.
Gabe still has the feeding tube and is on his oxygen intermittently. Gabe is doing great now and had a heart cath the end of March. His Fontan is scheduled for June 21st 2007. So we wait and pray and hope for a easier recovery his time.
