My name is Katie. My husband is Kevin, and I have three children. Samantha–9, Tyler–6 and Danielle (Dannie)–6 weeks. Dannie was diagnosed with severe Ebstein's Anomaly at birth. She was transported to Children's Hospital in Washington D.C. Danielle was on oxygen via nasal canula, and was put on propananol for SVT. The cardiologist told us that if Dannie could maintain sats of 70% and above she could go home without intervention.
They weaned her totally off the oxygen, she maintained 70%-80% sats, and we brought her home. The doctors tell us that we are going to wait as long as possible to do surgery.
