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Cienna

Tetralogy of Fallot/Double Outlet Right Ventricle


Cienna, 6 Years OldI am an active 6 year old girl that has had two open heart surgeries, one at 8 months and one at 20 months. My pulmonary valve was taken out to relieve my pulmonary stenosis and all my holes have been patched.

Currently, I am being monitored for aortic stenosis due to the rerouting of my aorta during the last surgery. I may have to have a donor aortic valve put in at my next surgery since the narrowing is so close to my valve. My surgeon would like to wait as long as we can until my next surgery since I am growing so fast at this stage in my life.

I enjoy being in first grade, playing with Raggedy Anns, Barbies and my Bitty Baby Doll, being in ballet, and mostly I love books. I have three brothers that help keep me active and healthy.

? Cienna (with help from Cathy and Mark, Cienna's Parents in Eastern Washington)


This article was last updated on October 17, 2001

  • Born:  August 22, 1995
  • Diagnosis:  Tetralogy of Fallot
  • Treatment:  Pulmonary Stenosis repair and holes closed


 

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Disclaimer: Our members' stories represent their own perception of their experiences, and the medical information contained within has not been reviewed for accuracy prior to publication. Stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your (child's) physicians with your questions and concerns.
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