Anna-Gray is 9 years old and in the 4th grade. She was born without a septum between her ventricles and had to be converted to a Fontan anatomy. She had pulmonary artery band surgery when she was 6 weeks old, a Glenn shunt when she was 16 months old, a Fontan operation when she was 3 years old, and a dual chamber epicardial pacemaker placement surgery when she was 8 years old for heart block. Anna-Gray has done very well because she has no valve problems or thickening of her ventricles or high pressures. Her oxygen saturation is 94% and she does ballet and jazz/hip-hop without difficulty. She is such a sweet beautiful child and we love her very much. She has no learning difficulties and makes straight A's which we are very thankful for considering she has been on bypass two times.
I am her mom and have been a Pediatric ICU RN for 13 years. Anna-Gray had all of her surgeries at our hospital and was in our Peds ICU every time. It has definitely given me another perspective—having my own child go through what I had taken care of many times before. I try to do a lot of teaching to our cardiac patients and their families since I have been through the same thing four times. It is very hard seeing your child hooked to so many machines and going into that OR room and I definitely now know how all of our families feel.
I have learned so much from my brave little angel and value that God has given me such a unique individual to care for and nurture. She has already taught so much to so many.
