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During my hospital stay my 16 month old son visited and contracted RSV. He later passed it to Addison when she was 2 weeks old. I had noticed her struggling to breathe and decided to take her to see the doctor. The doctor noticed immediately that her heart was racing and he called the pediatrician at the local hospital to arrange for us to go directly there. When we arrive her heart was beating at 252bpm and she was given digoxin which didn't work; she was then given ice on the face which had no effect either. An ECG was done and as soon as the pediatrician seen it he called the Children's hospital about 40km away we were then transported to there by a cardiac team. From here it was all a blur. We arrive in the trauma unit where her heart was restarted three times to no effect and then transferred to ICU where we stayed for six days before going to the cardiac floor. In ICU her diagnosis was made: Congenital Junctional Ectopic Tachycardia or JET. She was put on propafanone which worked for about a week and then it stopped, so she was switched to Flecinide which she is currently still on. We were in the hospital for 11 days, now she goes in every two weeks for ECG, echo and every 4 weeks a 24-hour holter monitor. We are unsure of her future at this point.
April 2007 Update
Addison was hospitalized on March 27th as she was up at 226bpm and the Flecinide had stopped working. She was switched to Amiodarone and that was not successful either. we made an emergency helijet flight to Edmonton's Strolley Children's Hospital where she under went an ablation catheter. She is doing very well and staying in sinus rhythm at 120 bpm. We hope this will not change and require a pacemaker in the future.



