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The Fine Line

Please note that the following represent each family's individual experiences and beliefs. Every family is different, and the needs and feelings of the children involved will be unique. We encourage you to seek professional advice if you have concerns or questions with regard to these issues.

Responses to Family Room topic:

I understand your problem.  I have a 6 month old with HRHS who refuses to sleep in his crib and cries every time I put him in there when he's tired.  With a child with a healthy heart, I would maybe try letting him "cry it out" but there's no way I'd even think of trying that with him.  

He also still wakes up 4-5 times a night and if I'm not right there he gets very upset!  He's my first child and it's been very challenging, but he's more than worth it!

A.

We have gone through the same experience with our daughter, who had the arterial switch operation, VSD repair, and pacemaker insertion at 2 week of life.  After 3 months at home we got reassuarance from our doctors that it was quite all right to let her cry for a period of time.  We would let her cry in increments of 15 minutes every night until she learned to comfort herself without having us around.  It was hard for us at the beginning.  

Now she is a happy 22 month old who knows crying doesn't always get everything she wants.

S.K.M.

I know the feeling. My mom would let Ethan cry but not as long as she did for us older kids. As far as spoiling him,  I don't think that could ever happen. Everyone keeps telling us to treat Ethan like we treated our other children. 

Don't treat him any differently. Trust your gut. Remember you are the mom and you know what is going on with your child. Yes, we still worry, but we are giving him his space and we are letting him grow up,  but we still protect him more than the other children.

K.A.

My beautiful little girl, who is now 30 months old, was born with a univentricular heart, total heart block, TGA, etc., so i know the anxiety that you feel as well as the dilemma that you face. I too have older children, and I was quite strict with them, practiced controlled crying, and taught them the best way to behave. Little Hetty wails and I run, trips and I scoop her up. My rules and parenting style are so different. Interestingly, whereas the tantrums of the older children took some overcoming (time out, withholding of a treat, etc) the delicate treatment means that simply putting her in her room with the door open results in a corrected behavior. 

I try and explain why it is different to the other two and they are always accepting, only Hetty gets more chocolate than them as she needs a high calorie diet to gain weight.

That urge to protect against the un-protectable is so strong, yet really the ultimate question for me that leaves me at rest is that there is no real difference in how they behave as children, so why change. Besides, none of them remember how I treated them as infants and toddlers, their conscience is in the here and today. 

The guilt is only in the mind of the parent.

J.T.

I also have never let my daughter Corinne [pulmonary atresia] cry. She is now 2 years old and definitely knows right from wrong. Distraction is key and we keep her busy, but she is very well behaved so far and it beats seeing her struggle for breath!

S.R.

I can relate!  After my son, Patrick had his second surgery to correct his CHD (aortic atresia), one of my first questions to the nurse and doctor was "is he allowed to cry?"  They told me yes, but I still cannot let him go beyond 10 minutes.  He is 19 mos old and I fear that I am spoiling him too.  But then I think of how lucky we are to still have him and know that as he gets older we will be able to help him get what he needs and understand his uniqueness!  Hope this helps!

C.

I am finding myself facing the same problem. We have a 16 month old daughter (she is our 4th child) who I also do not like to let cry. Recently she has been waking up during the middle of the night crying, and crying hard! I tend to pick her up and then she will not go back down in her crib. So I have started the habit of bringing her into bed w/ my husband & I. My husband loves her, but he does not want me to always give into her crying, but I don't want to let her cry too long because of her heart. She goes back down to sleep during the night for my husband, but she knows I am a push over and will not stop crying until I take her to bed with me. I am fearful that we may spoil her too, giving into every little cry. What else can a parent do?

K.

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