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 CHD Awareness Week

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Congenital Heart Defect Awareness Week
February 7-14, 2014 

An international coalition of families, individuals, non-profit organizations, support groups, and health professionals participate in a campaign to increase public awareness of Congenital Heart Defects and Childhood Heart Disease.

CHD Week Volunteer Proclamations Participants Calendar
 

What is CHD Awareness Week?

CHD Awareness Week is an annual awareness effort to help educate the public about Congenital Heart Defects. Participants include individuals, local support groups, national and local organizations and congenital cardiology centers throughout the world!



Why is it important?


Congenital Heart Disease is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide.

Despite the fact that CHD affects approximately 1.8 millions families in the U.S.,  a relatively small amount of funding is currently available for parent/patient educational services, research, and support.

By sharing our experiences and providing information, we hope to raise public awareness about conditions that affect approximately 40,000 babies each year in the United States alone.

It is our sincere hope that efforts to educate the public will result in improved early diagnosis, additional funding for support and educational services, scientific research, and access to quality of care for our children and adults.
 

How can you help?

Travis AFB 2008 CHD Week Celebration
Travis AFB 2008 CHD Week Celebration
  • Request a proclamation from your Governor and/or Local elected official(s), and try to arrange a public signing ceremony

  • Help pass a bill for Pulse Ox Screening for Critical Congenital Heart Disease in your state.

  • Use Social Media to inform people about CHD

  • Add the CHD Awareness Week Banner to your website(s) and blogs

  • Print and distribute CHD Awareness Week brochures in your community

  • In Schools

    In years past, several individuals worked with their child's school to hold a fund-raiser, plan educational activities, distribute CHD information brochures, make art/Valentine's Day projects for children/achd'ers in the hospital during CHD week, etc. Contact your school's principal to discuss ideas and get their approval.

  • Contact your local media: TV News station, newspaper(s), and radio station(s)

    If you are planning an event, want to highlight your local and/or national organization, receive a proclamation, or have a compelling story you want told, call or email your 'pitch' to an editor or health reporter. Small local papers have been very receptive to these requests in years past, so give it a try! Please make sure that you have access to accurate and reliable facts before making the call.

  • Send a letter to the editor of your local newspaper or online news outlet

    Explain what CHD Awareness Week is, why it is important, and encourage readers to support your efforts in specific ways.

  • Blogging

    Create a blog or series of blogs during CHD Awareness Week to share your personal experiences, information about CHD (CDC/CHPHC), encourage your readers to support CHD related causes, etc. If you intend to blog for CHD during that week, please register with us so we can direct our site visitors to your page!

  • Plan a gathering of families and individuals affected by CHD in your community

    If you do not have a local support group, please contact us to be put in touch with others who may live nearby
  • Contact your local Pediatric/Adult Congenital Cardiology centers to explore ways that you could work together

    Many hospitals/practices plan awareness and other activities during CHD Awareness Week. Speak with someone in Marketing or Public Relations to find out if they have plans to participate, and discuss ways that you could collaborate.

  • Please register with us to be included in our listing of participants and sponsors for CHD Awareness Week 2014

 

What's Happening

Information about Congenital Heart Defects


 For more information, please contact us.

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