Congenital Heart Defect
February 7-14, 2013
An international coalition of families, individuals, non-profit
organizations, support groups, and health professionals participate in a
campaign to increase public awareness of Congenital Heart Defects and
Childhood Heart Disease.
What is CHD Awareness Week?
CHD Awareness Week is an annual awareness effort to help educate the
public about Congenital Heart Defects. Participants include
individuals, local support groups, national and local organizations
and congenital cardiology centers throughout the world!
Why is it important?
Congenital Heart Disease is considered to be the most common birth
defect, and is a leading cause of birth-defect related deaths
Despite the fact that CHD affects approximately 1.8 millions families
in the U.S., a relatively small amount of funding is currently
available for parent/patient educational services, research, and
By sharing our experiences and providing information, we hope to
raise public awareness about conditions that affect approximately 40,000
babies each year in the United States alone.
It is our sincere hope that efforts to educate the public will result
in improved early diagnosis, additional funding for support and
educational services, scientific research, and access to quality of care
for our children and adults.
Travis AFB 2008 CHD Week Celebration
Request a proclamation from your Governor
and/or Local elected official(s), and try to arrange a public
Help pass a bill
for Pulse Ox Screening for Critical Congenital Heart Disease in your
Media to inform people about CHD
CHD Awareness Week Banner
to your website(s) and blogs
Print and distribute
CHD Awareness Week brochures
in your community
In years past, several individuals worked
with their child's school to hold a fund-raiser, plan educational
activities, distribute CHD information brochures, make
art/Valentine's Day projects for children/achd'ers in the hospital
during CHD week, etc. Contact your school's principal to discuss
ideas and get their approval.
Contact your local media: TV
News station, newspaper(s), and radio station(s)
If you are planning an event, want to
highlight your local and/or national organization, receive a
proclamation, or have a compelling story you want told, call or
email your 'pitch' to an editor or health reporter. Small local
papers have been very receptive to these requests in years past, so
give it a try! Please make sure that you have access to
reliable facts before making the call.
Send a letter to the editor of
your local newspaper or online news outlet
Explain what CHD Awareness Week is, why it
is important, and encourage readers to support your efforts in
Create a blog or series of blogs during CHD
Awareness Week to share your personal experiences, information about
CHD (CDC/CHPHC), encourage your readers to support CHD related
causes, etc. If you intend to blog for CHD during that week, please
register with us so we can
direct our site visitors to your page!
Plan a gathering of families
and individuals affected by CHD in your community
If you do not have a local support group, please
contact us to be put in touch with
others who may live nearby
Contact your local
Congenital Cardiology centers to explore ways that you could
Many hospitals/practices plan awareness and
other activities during CHD Awareness Week. Speak with someone in
Marketing or Public Relations to find out if they have plans to
participate, and discuss ways that you could collaborate.
with us to be included in our listing of participants and sponsors
for CHD Awareness Week 2013
For more information, please contact us.